Living With Endometriosis – Kayleigh’s Story

Featured image by Kinga Cichewicz on Unsplash

Today I want to raise awareness for a condition that affects women all over the world.

Endometriosis isn’t spoke about often as a lot of women don’t really know what it is or understand it. I want to help people understand the symptoms and share a real life story.

First of all what is endometriosis?

Endometriosis is a common condition where tissue that behaves like the lining of the womb (endometrium) is found in other parts of the body.

It can appear in many different places, including the ovaries, fallopian tubes, inside the tummy, and in or around the bladder or bowel.

Endometriosis mainly affects girls and women of childbearing age. It’s less common in women who’ve been through the menopause.

It’s a long-term condition that can have a significant impact on your life, but there are treatments that can help.

Information above taken from the NHS website.

endometriosis

The latest facts and figures about endometriosis.

  • 1 in 10 women of reproductive age in the UK suffer from endometriosis.
  • 10% of women worldwide have endometriosis – that’s 176 million worldwide.
  • The prevalence of endometriosis in women with infertility be as high as to 30–50%.
  • Endometriosis is the second most common gynaecological condition in the UK
  • Endometriosis affects 1.5 million women, a similar number of women affected by diabetes.
  • On average it takes 7.5 years from onset of symptoms to get a diagnosis.
  • Endometriosis costs the UK economy £8.2bn a year in treatment, loss of work and healthcare costs.
  • The cause of endometriosis is unknown and there is no definite cure.

Facts taken from this website.

I have interviewed Kayleigh (a personal friend of mine) who unfortunately suffers from this condition; and she helps me fully understand what endometriosis is, how to recognise the symptoms, and what it’s like living with this condition.

1. So what age was you diagnosed with endometriosis?

I was 24

2. How long were you suffering with symptoms before diagnosis?

Around 3 years

3. What symptoms did you experience?

Excruciating period pains, feeling weak, tired, heavy bleeding, pain during sex, really bad lower back and pain in my buttocks; also certain food would make my stomach feel worse i.e. anything not cooked fresh

Most importantly I could never pass stools when on my period which resulted in bad bloating (from one week to another I wouldn’t be able to fit in a pair of jeans)

Also I had blood from my rectum as my Endometriosis was in my bowel, not a nice feeling at all..

 4. Was it easy being diagnosed, or did you have to go through a lot of tests that took time to find the right diagnosis?

It was so complicated. IBS was the conclusion but nothing changed.. After a lot of research I practically diagnosed myself and saw someone independent

5. Did you find it a relief being diagnosed?

Partly, as I knew endometriosis ticked all the boxes after my personal research

6. What is it like to live with and how does it affect your daily life?

It’s so unpredictable. Every day is different and you have to take each day as it comes

7. Do you have to have regular appointments and keep an eye on any changes?

Yes, every month

8. What’s the hardest thing to overcome when living with endometriosis?

The pain, and making future plans

9. Do you have to take medication for this condition?

When I first went to the hospital after having a private consultation I had a course of Zoladex which was injected into my stomach by my GP or Practice nurse for 3 months. This stops your periods and for the duration I had this injection I was like a different woman! It made such a difference and from then I was 99% sure I had Endometriosis. After my big operation I now have the Mirena Coil fitted which works wonders!

10. Have you reached a point in your life now where you have come to terms with the condition and accepted it?

I suppose I always knew that I had endometriosis before I officially got diagnosed. Now I take each day as it comes. YOLO is my motto!

11. What would you say to women who have been newly diagnosed with endometriosis?

Don’t give up! I know it can be so hard, but there are always people worse off in the world. That’s what made me pull through as well as being a strong woman

You will eventually work out a treatment plan for yourself along with a professional, which is always exciting to see light at the end of the tunnel!

I actually had a severe case and suffered really bad; I look back now and wonder how I dealt with it

God only gives us what we can handle and if not it’s a challenge ;-)))

endometriosis

A BIG thank you to Kayleigh who has very kindly allowed me to interview her on this subject! Endometriosis surprisingly doesn’t have as much awareness as it should, and hopefully anyone reading this, now has a better understanding of this condition and some of their questions will have been answered.

Kayleigh, thank you for taking part in this interview and as always I wish you the best!

NOTE: This post may contain affiliate links which means I’ll earn a bit of commission at no extra cost to you of course! 🙂 Read more about it here)

lozza

 

 

 

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13 Comments

  1. wishmommatoldme says:

    My aunt has endometriosis – it has been a lifelong struggle for her. I had no idea that so many women had it though!

    1. Sending love to your aunt! It’s surprising how many women are affected isn’t it! It shocked us too! xo

    2. Anonymous says:

      Tell your aunt don’t give up, it’s a struggle with pain management but honestly once they arrenage a treatment which is best for her she will be back to herself 🙏🏽 X

      1. Great advice Kayleigh! 🙂 xo

  2. Kay says:

    If you need to ask any questions regarding your aunt please let us know Kay x

  3. What a brave thing to do Kay. I know you struggled with it for a while but actually i never heard you really complaining. Strong as you are. I hope they find a permanent cure for it that takes away the pain forever. Lots of love x Bo

    1. Kay’s never one to complain, she’s a true warrior! 🙂 xo

  4. Jeyda Kubilay says:

    A beautiful read shared by a very beautiful woman! Thank you for telling your story Kay, your kind and selfless act will help so many women through their own journey. Love you loads xxx

    1. I’m so grateful she took part in this interview. It helps raise awareness as you say, and spreads the word! 🙂 xo

  5. M.A.V says:

    You’re definitely one of the strongest women I know. I know how much this can affect you, but you carry on day to day like a true warrior.

    One of the reasons why I admire you so much!

    <3

    1. She’s a strong one indeed! 🙂 xo

  6. Truly inspiring Kay. Refreshing to read of someone who has suffered yet pushes through with determination and grit! 👏🏾👏🏾👏🏾

  7. Anonymous says:

    You are added to a list of warriors that I hold dear to my heart you are truly one of a kind and a blessing on this earth

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